This young girl is doing a presentation about genetic disorders and asked my TCS group if we can share our experiences with the disorder. She said was going to use some of what I wrote for her report so I wanted to share what I sent:
Olivia-
I grew up always feeling different because I didn't look like my family. And I held on to a lot of resentment because of how I felt and the way I looked. When I was much older I had learned to accept my difference but never really letting go of the anger of my childhood. And honestly when I became pregnant I was so excited that I would have a "perfect" baby and not feel quite so different, so you can imagine my feelings when I had Mason. I felt that I had done something to harm him.
The day he was born was the first day I have ever heard about TCS. And when the geneticist told me I had the genetic traits as well, suddenly this wave of emotion came over me. All those years of pain and suffering came back and I finally understood and was able to let go of the past.
Today I am so grateful to my higher power for bringing Mason into my life just the way he is. I am thankful that I can explain TCS to him and he will not have to grow up the way I did, and that we can go through it together. If I could go back I wouldn't change one thing about my past, or my present and I am really looking forward to the future.
-Jess
